With the support of the Lifelong Learning
Programme of the European Union
Autism in Pink
The research carried out and the materials produced by this project will provide experts in the field of autism, carers, families and teachers of women with ASD with a better knowledge about autism in girls and women and better enable them to tailor their diagnosis and assistance.
The focus groups and workshops will help inform the research whilst at the same time empowering women on the spectrum to take an active role in shaping their own lives and raising the profile of women with autism.
The approaches used to assess issues concerning women with autistic conditions include formal measures of quality of life and have been designed to harmonise with the values and aims of the EU in terms of human rights and quality of life and the values enshrined within Autism Europe’s Charter for Persons with Autism.
Assessment and evaluation involves the use of the Personal Wellbeing Index (PWI Cummins 2005), a tool developed for this purpose and which can be used flexibly to reflect the subjective experience of this diverse group.
Baird, G. et al. (2006) Prevalence of disorders of the autism spectrum in a population cohort of children in South Thames: the Special Needs and Autism Project (SNAP). The Lancet, 368 (9531), pp. 210-215.
Brugha, T. et al (2009) Autism spectrum disorders in adults living in households throughout England: report from the Adult Psychiatric Morbidity Survey, 2007. Leeds: NHS Information Centre for Health and Social Care.
Available to download at http://www.hscic.gov.uk/catalogue/PUB01131 [Accessed 10/05/2013]
Fombonne, E., Quirke, S. and Hagen, A. (2011). Epidemiology of pervasive developmental disorders. In Amaral D.G., Dawson G. and Geschwind D.H. eds. (2011) Autism spectrum disorders. New York: Oxford University Press, pp. 90 – 111.
Available from the NAS Information Centre.