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With the support of the Lifelong Learning

Programme of the European Union

Autism in Pink

Follow-up project

♀Autism - Behind the Mask:

A Follow-up of the British women previously involved in the project

‘Autism in Pink’

 

This project is funded by the John and Lorna Wing Foundation.

 

Aims

 

To increase understanding and awareness of women with autism.

  • Explore themes that emerged from ‘Autism in Pink’ -‘masking’ and ‘stereotyping’ in particular- and implications for public / professionals / autistic females.

  • Investigate perceived levels of anxiety and personal wellbeing using established questionnaires.

  • Learn about how life has changed for participants since the end of ‘Autism in Pink’

  • Explore positives, achievements, talents of participants.

 

To benefit autistic females.

  • Empower participants to take an active role in increasing knowledge and raising the profile of autistic women in society.

  • Facilitate participants to share stories and strategies in the supportive and positive environment of regular structured workshops.

  • Share findings, add to and create resources.

 

Outputs

 

10 out of the 12 British women who participated in ‘Autism in Pink’ take part in the workshops. They share their experiences and together we will turn what we learn from this into structured and accessible information.

 

We will do this by building on the ‘Autism in Pink’ resources and materials. In addition, we will create new resources for GPs to go on the Royal College of GPs website. We will also speak about our findings in at least 2 conferences, including the NAS women and girls conference in November 2017.

 

The questionnaires that we are using to investigate anxiety and wellbeing are the GAD7 (Generalised Anxiety Disorder 7-item Scale) and PWI Personal Wellbeing Index-Adult.

We are collecting responses to these questionnaires from male and female adults on the autism spectrum and in the UK. The survey should take approximately 5 minutes.

 

If you are interested in taking part please go to the link below:

https://www.surveymonkey.co.uk/r/2DVN3ZZ

 

 

Questionnaires:

GAD7 - Generalised Anxiety Disorder 7-item Scale:

Source: Spitzer RL, Kroenke K, Williams JBW, Lowe B. A brief measure for assessing generalized anxiety disorder. Arch Inern Med. 2006;166:1092-1097

 

PWI-A - Personal Wellbeing Index-Adult:

International Wellbeing Group (2006). Personal Wellbeing Index: 4th Edition. Melbourne: Australian

Centre on Quality of Life, Deakin University

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